ARVAC Annual lecture
Patient and Public involvement – the role of the community in health and social care research
Thank you to everyone who attended our annual lecture, which we held in London on the 17th July 2018. The event was chaired by Colin Rochester and the afternoon’s speakers were:
Peter Beresford OBE, Professor of Citizen Participation at the University of Essex. Download Peter’s presentation notes. Listen to Peter’s presentation here:
Jurgen Grotz, Senior Research Associate for the Patient and Public Involvement Research theme of the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) East of England. Download Jurgen’s PowerPoint slides. Listen to Jurgen’s presentation here:
Savitri Hensman, the Patient and Public Involvement Coordinator at the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) South London and based in the Service User Research Enterprise (SURE) team at King’s College London. Download Savitri’s presentation notes. Listen to Savitri’s presentation here:
Speakers explained that involving Patient and Public representatives and communities is complex and potentially flawed but can be a rich and rewarding contribution to health and social care research. Speakers pointed out that it is not a substitute for specific service user involvement and called for a better understanding of the potential and the limitations of Patient and Public Involvement. There was a clear call that in our challenging policy environment participation must embrace the personal and the political and their interrelations.
Following some discussion participants raised a range of questions we or others might wish to address in future work:
- parity of esteem between Patient and Public representatives and researchers and how payments may reflect this;
- practical implementation issues such as researcher’s ability to deal with the emotional needs of Patient and Public representatives;
- the status of Patient and Public representatives as volunteers and the implications of this such as the need for clarity about the expected outcomes of their involvement;
- lack of knowledge of how many Patient and Public representatives there are and who involves them.
ARVAC is delighted that Patient and Public Involvement in health and social care is taking place, but as the speakers explained and some of the participants pointed out, there is still a long way to go to make it work in the best interest for all.
ARVAC Annual Conference and 2017 AGM
Thank you to everyone who came to our annual conference and AGM which we held on the 6thFebruary 2018 in London.
It was a fantastic afternoon and the event included two excellent presentations, from Nick Mahoney of the Raymond Williams Foundation and Paul Black of Nottingham Civic Exchange.